Second Annual LHON Symposium
June 5, 2014
Pittsburgh, PA
Connect with the LHON community. Share experiences and resources. Meet the experts.
LHON Symposium now an annual event!
During our event last June, individuals affected with LHON and their families came together to hear from the experts on the science of LHON. Those who attended the event gained new insights and formed new connections within the LHON community. The response to last year’s half-day event was so positive that we intend to make the symposium a full-day, annual event to be held in different cities across the U.S. each year.
Living with LHON
The focus of the second annual symposium will be on Living with LHON. While the agenda is in development, we plan to share the real-life experiences of those who are diagnosed with LHON and living fulfilling lives, family members, and unaffected carriers of LHON. You’ll have the opportunity to ask questions, and to learn first hand about tools and resources that have helped people overcome the challenges LHON presents. In addition to these real-life stories, experts will be on hand to provide an update on the latest advancements in LHON research and potential treatments.
Do you have a story to share?
By sharing the stories of those whose lives have been impacted by LHON, we hope to educate, inform and inspire event attendees. We plan to capture these real-life stories on video, to make them available to others who may begin their journey with LHON in the future. If you are planning to attend and are interested in participating as a panelist and would be willing to share your LHON story, please contact Lissa Poincenot at [email protected].
Join us in June!
Please consider joining us for this unique opportunity to connect with others within the LHON community, share experiences, learn about tools and resources, and meet the experts. Building the LHON community is a critical step toward raising awareness, helping those affected, and ultimately working toward a cure.
More information regarding the event will be provided as it is finalized in the coming months. The second annual LHON Symposium in conjunction with the United Mitochondrial Disease Foundation (UMDF) will take place on June 5, 2014 at the Sheraton Station Square in Pittsburgh, PA.
Click here to learn how to make hotel reservations at the discounted UMDF Symposium rate.
At the 2013 LHON conference in Newport Beach, CA, Dr. Alfredo Sadun and Dr. Valerio Carelli made very informative presentations about the LHON clinical profile and therapeutic options. Click on the links below to watch their presentations.
Dr. Sadun: http://vimeo.com/70799342
Dr. Carelli: http://vimeo.com/70802123
Dr. Sadun: http://vimeo.com/70799342
Dr. Carelli: http://vimeo.com/70802123
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